Successes...Great and Small Pat
Yourself On The Back
It
is often much easier to recognize our child's progress than
it is to see how far we as parents have come. It is important
for you to stop from time to time and acknowledge your own
successes. Most of us were pretty much stopped in our tracks
when we first received the diagnosis of our child's hearing
loss. Some parents are able to move on from that point with
hardly a pause, while others have a harder time. Regardless
of which category you fit in to, you have more than likely
made more progress than you have given yourself credit for.
Take some time and look back at all you have accomplished
over the last year, month, or even the last week. It is
much easier to continue doing what we have to do when we
can see how far we have already come.
Can We Ever Do Enough?
~"I
remember a phone conversation I had with my cousin a year
or so after my daughter's hearing loss was identified.
As was often the case, our conversation turned to how
my daughter was doing. At the time I was driving her twice
a week, 45 minutes each direction, to speech therapy,
running to doctors and audiology appointments. I was also
involved in starting a parent support group, was reading
everything about hearing loss that I could get my hands
on, and was diligently working at turning everything possible
into a "learning experience" for my daughter.
Although
I cannot recall the specifics of the conversation, I remember
that I was worrying that I was not doing enough for her.
I will never forget my cousin's response. She said, "Do
you honestly think you'll ever feel like you're doing
enough?" She then went on to remind me of where we
had started just a short time ago, and encouraged me to
look at all we had learned and done already, rather than
to focus on all that still needed to be done. That was
great advice, and something that I've tried to remember
and pass on to other parents over the years."
Setting Our Children Up For
Success
~"Finding
out my beautiful baby was deaf was a huge blow. I had
never known a deaf person in my whole life. I had been
around one girl in college who was deaf, but I was afraid
to talk to her, so I kind of ignored her. I was terrified,
all the dreams I had for my daughter were in jeopardy.
I think I cried for days, and was in a daze for much of
the next 6 months at least. All I could think of was she
has never heard me tell her "I love you". I
thought about things I thought I would never experience
now, giggling teenagers at a sleepover, her walking down
the steps in her first prom dress, hours and hours of
trying to get her off the telephone!
Even though the first few months
were in a fog, we, as a family did manage to take baby
steps forward. I did spend those first few days crying,
but also reading. I read everything I could get my hands
on. The next few months, I spent every morning at the
breakfast table with my 4 year old son, looking up, and
learning to sign what I wanted to say, word by word. The
other thing I found from my reading the first days, was
addresses of organizations that dealt with deafness and
I wrote to each one for any information they could give
me. The most important contact that resulted from those
letters was a phone call from a local parent that was
affiliated with the American Society for Deaf Children.
Our family attended their next local meeting and had the
chance to see older children who were deaf that where
talking to their parents, playing, being successful in
school, and acting like ordinary kids! These two steps
probably did more to lead our daughter on a path of success
than anything else.
After 2 months, school had started
again so we had access to sign classes which the whole
family participated in, and where we found others just
like us. WE focused on learning sign, quickly and well,
and being involved with other families with deaf kids.
There have been many challenges along the way, and many
fears. Some of the biggest have involved school and getting
her into the program I felt was best (not perfect). You
get in, and then you get involved to help bring even more
improvements to the best program you can find. Tough times
also come when she realized she was different and then
each time she feels she is treated differently, or ignored,
or blatantly discriminated against because she is deaf.
We
now have a beautiful, 16 year old, active, happy, intelligent
daughter who goes to a public high school, is a member
of National Honor Society, varsity swimming, a cheerleader,
yearbook staff, and several other clubs. She has been
to all three high school homecomings, and last year she
attended 3 proms! And as for the giggling sleepovers-there
are other girls here, deaf and hearing most weekends,
and its been that way for years now, and they do giggle,
and gossip, and share happiness and heartache, and talk
about boys and futures! We have spent hours and hours
and driven thousands of miles over the years to make sure
she has lots of time with deaf friends and is involved
in activities with deaf kids and adults as much as possible.
She now enjoys visiting at the school for the deaf and
has developed many friendships with students there and
has joined some of their clubs.
I
cannot think of one thing that she has not been able to
do because she was deaf-although some things took lots
of planning, or educating people, or contacts made ahead
of time. I feel so lucky to have been given this child,
she has taught me so much and I admire her greatly as
she is the one who has the drive, and the perseverance
to not give up. I hope she learned some of that from me
as I showed her how to get involved and keep working for
changes that need to be made. She also developed security
in herself knowing that we respected her deafness, as
we continue to sign even though she has a cochlear implant,
we see it as a tool, not as a cure."
While
professionals play a major role in the lives of our children,
it is we, the parents, who have the most impact on them.
When we believe in them and expect that they can succeed,
they will. Some of us may have to measure success a little
differently than others, but those successes are no less
significant. What is important is that we give our children
the confidence to believe in themselves and the tools they
need to reach their full potential. We must also believe
in ourselves. Celebrate your child's successes, but don't
forget to acknowledge your own.