my baby's hearing
 Hearing and AmplificationLanguage and LearningParent to Parent
Visit the Boys Town National Research Hospital Return to My Baby's Hearing Homepage National Institute on Deafness and Other Communicative Disorders
 
 

 

coping with diagnosis: parent views
how do we decide?
successes...great and small
what does the future hold?
working with professionals
parent talk


 
parent to parent
 


Working with Professionals
Becoming Part of the Team

father playing with childYou are not "just a parent," you are one of the professionals. You are a key player on the team.

~"I want professionals to understand that there is so much more to my daughter than her hearing loss. She is not just an audiogram. She is not just a test score. She is a child who just happens to have a hearing loss."

~"When professionals acknowledge that the parent knows the child in a way they never will, they can tap into the best resource possible."

~"I think that sometimes professionals see things and automatically put us in a category without even getting to know us. Without even realizing it, they are putting stress on our families that doesn't need to be there. Each of us is an individual, each of us handle things in different ways. For some of us, a child with a hearing loss is a breeze. For others it is a struggle. We all have challenges in different areas, and too many times professionals don't take the time to find out who we are and who our children are. We aren't the families of previous years and the dynamics of our children and families are different, so our needs are different."

~"I would like professionals to understand that parents and professionals are a TEAM with the best interest of the individual child at the center."

~"We know our child best…Listen to us. Help us achieve our goals. Think of us as a team."

~"I want professionals to know that despite my daughter's multiple disabilities and developmental delays, she is capable of doing many things, with good potential for the future."

Parent Interview #1

click for captioned version
(internet explorer only)

A New Role for Parents
Immediately after the diagnosis, a flurry of activity thrusts parents into new roles that are unfamiliar and sometimes intimidating. Until now we knew our child so well, and we were the center of their universe. Often, overnight we find ourselves in the position of having to trust a number of professionals who seem to know more about our child than we do.

You Know Your Child Best
One very important thing to remember during this time is that while you may not understand the hearing loss and all that goes with it, you still know and understand your child better than anyone else in this world. What sets us apart from the professionals is our emotional attachment to our children. While this attachment can sometimes get in the way when we are working with professionals, it is also the force that drives us to settle for nothing but the best and go to any length to figure out what that may be.

http://www.colorado.edu/slhs/mdnc/
http://www.ldonline.org