my baby's hearing
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coping with diagnosis: parent views
how do we decide?
successes...great and small
what does the future hold?
working with professionals
parent talk


 
parent to parent
 


Working with Professionals
Learning To Become An Advocate For Your Child

Professional with childLearning to become an advocate for our children is one of the most important actions we can take to help them with their hearing loss.

~"As I learned more, I became more assertive and learned how to be a better advocate for my child. I learned not to be intimidated by professionals, especially those who had a lot of book knowledge, but knew nothing about my child personally."

~"Over time we have learned to be more aggressive and proactive with doctors, and we refuse to be made to feel ignorant or incapable just because we don't know the medical terms."

~"The way I deal with professionals has changed because now I'm more aware of the learning process and how my child is doing."

~"I realize now that if I want to do things a certain way, I have to say so. If I want to know something, I have to ask. I am my child's advocate and must act as such."

~"I understand things better now. I'm not hesitant to ask questions, I have expectations. I try to work as part of a team."

~"We went from knowing nothing about premature infants and hospital procedures and hearing loss, to the point where now we want to understand everything the doctors and specialists are sharing with us.."

~"I no longer feel like the ignorant one who is ready to jump at whatever advice the professionals offer. I have learned that there are many opinions, and that many professionals lack a certain understanding that parents have, simply because the child is their own. I have learned to stand up for my opinions and beliefs and the things that I know to be true in my daughter's life, and not let the opinions of professionals undermine me."

Parent Interview #1

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Standing in the Gap Between Child and Professional
young girl on monkey barsVery quickly, most of us come to understand that we are the ones who will be standing in the gap between our child and the professionals. Because we love our children and want the best possible services for them, this is not something we have to think about doing, we just do it.

Welcomed Input
Fortunately, many professionals welcome input from parents and are grateful to be able to work with an involved parent to figure out what is best for the child. The hard part comes when we are faced with having to challenge the opinion or advice of a professional. It can be very intimidating to walk into a room full of professionals. An important thing to remember is that you are part of the team and you deserve the respect and consideration of those working with your child.

http://www.ldonline.org/ld_indepth/parenting/ccld_advocacy.html