The great majority of
children who are identified with a hearing loss are born
to hearing parents. In most cases there is no history of
hearing loss in the family, and most know no other families
in the same situation. This often leaves parents feeling
very alone, and many find themselves searching out others
who understand what they are going through. During this
time parents find themselves being thrust into new and unfamiliar
roles. They suddenly feel the need to become experts on
the subject of hearing loss in order to make the right decisions
for their child, as well as become advocates for the services
their child needs immediately, as well as in the years to
come. Initially, this task seems overwhelming for most parents.
The goal of this section
is to link parents to other parents who have walked in their
shoes and have agreed to share their stories, experience,
expertise, and advice. You will read how other parents reacted
to the diagnosis of their child's hearing loss, as well
as what they found helpful for coping during this time.
You will also learn what they have found to be helpful to
them when faced with some of the daily challenges of raising
a child with a hearing loss. They will share their successes,
as well as their fears, and will offer tips for working
with professionals.
Coping
with the Diagnosis: Parent Views
For some parents acceptance of the hearing loss comes easily,
while others may struggle with it for some time. For most,
it is an ongoing process. In this section parents share
their reactions to the diagnosis, coping strategies, and
tips on how they dealt with the reactions of others.
Working
With Professionals
Upon learning that their child has a hearing loss, parents
find themselves taking their child from appointment to appointment
with a variety of professionals. Becoming part of the team
and learning to work with professionals is crucial, and
in this section parents offer suggestions on how to do this
effectively.
How Do
We Decide?
Once a child's hearing loss is diagnosed, parents are faced
with many decisions. In this section parents offer advice
on understanding your rights as a parent, how to know which
decisions need to be made immediately, which ones can wait,
what to do if you disagree with professionals, and how to
find out what your choices and options are.
Parent
Talk
Parents know their child best. In this section parents offer
practical hints on issues that are often of concern to new
parents. Some of the topics discussed include: deciding
which communication mode is best for your child, discipline,
toilet training a child who has a hearing loss, and how
to avoid overprotecting your child.
Successes
Great
and Small
Success comes in all sizes, and often we forget that it
takes many small accomplishments to add up to the big ones.
Learning to celebrate even the smallest successes helps
parents to be able to see how far they and their child have
come, rather than to focus on how far they still have to
go. In this section, parents offer suggestions on how to
keep sight of this and celebrate the little successes along
the way.
What
Does the Future Hold for My Child?
Dreams and expectations often change when a parent learns
that their child has a hearing loss. In time, however, parents
come to understand that their child is still the same child
he or she was before the diagnosis. In this section veteran
parents share how their initial expectations for their children
changed through the years, and how their children are doing
today.
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