my baby's hearing
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coping with diagnosis: parent views
how do we decide?
successes...great and small
what does the future hold?
working with professionals
parent talk


 
parent to parent
 
How do we Decide?
Where Do I Find the Information I Need to Make a Good Decision?

Most parents would agree that the best way to make good decisions for their child is to be educated and well informed. Not knowing where to find the information you need can be very frustrating. Professionals can often be a good source of information, but many parents feel the need to do their own research in order to feel comfortable about making a decision.

~"We often found that our best resource was other parents who had been in a similar situation. A parent's first loyalty is to their child, not a school district or their employer. Most often their only concern is the welfare of their child, and they are more than willing to be open and honest with you about their own experiences. Also, they will often be able to refer you on to other parents who might have more experience, or point you to reference materials that they used when trying to make a specific decision for their own child. They have seen first hand many of the pros and cons surrounding a specific decision they have made in the past and are usually very willing to share this information with you."

~"The best way to find the information you need is to contact other parents with experience, talk with trusted professionals and educators, and do research on the Internet and at the library."

Service Coordinator~"Talking with other parents and our parent advocates and service coordinators has been the most helpful. Also, talking to deaf adults and younger deaf adults about their experiences has been helpful."

~"Besides taking part in various activities involving other deaf and hard of hearing children and their families, and working closely with our child's teachers and caregivers, we have found that there are various sites on the Internet where you can communicate with deaf or hard of hearing persons, or other parents, and gain from their wealth of experience."

~"Fortunately, because I am deaf, I already knew many resources when I found out that my daughter was deaf. However, that did not mean that my choices and/or decisions came about easily. I have had many battles with school districts and other parents. State Commissions for the Deaf and Hard of Hearing are excellent resources and have offered me assistance in many different ways."

~"One of our best resources has been people who work with the hearing impaired. We have developed good relationships with many audiologists and teachers who we continue to go to for advice."

~"One of the first things I have always done is to talk to parents with older children who have been in a similar situation. Often they have already done the research in order to make a decision, and are able to share that with you, as well as being able to share the results of that decision. The thing to remember about doing this is that every child is different. So what they decided may not necessarily be the right decision for your child. The benefit though, is that they are honest enough to tell you if they feel they made the wrong decision, and will give you the pros and cons, which is something that not all professionals will do. Parents live with the decisions, whereas professionals don't."

~"I get my information from books, friends, deaf adults, professionals, and from knowing my son. I get it from wherever I can find it. Ultimately it is just you!"

~"I have listened to professionals and other parents, read books, spent time on the Internet and visited schools and institutions. Other parents have been the most helpful to me. There are none who have made the exact same decisions as us, but they have helped me in many different areas by sharing their experiences with me and helping me gather as much information as possible, so that I could open-mindedly make the best decision for us."