How
do we Decide?
What Are Some of the Important
Decisions I Will Have To Make?
There
are many decisions ahead, but thankfully you won't be asked
to make them all at once. Normally, shortly after a child's
hearing loss is diagnosed, a number of professionals begin
working with your family to provide support and help you
figure out what you need to do next. Some of the people
who might become involved with your family at this time
include:
- Service
Coordinator
- Infant/Family
Specialist
- Pediatric
Audiologist
- Ear,
Nose and Throat Physician
- Pediatrician
or a Family Practitioner
The
role of each of these professionals is discussed in detail
in the Hearing and Amplification section of this website.
To read more about each of these professionals, and the
services they provide, click
here.
For
a child with a hearing loss, it is essential that early
intervention begin as soon as possible. Early intervention
and what it means for your child and your family is discussed
at length in the Language and Learning section of this website.
To learn more about early intervention click
here.
Because
each child and family situation is unique, it would be nearly
impossible to try to list all of the decisions that you
will be faced with. Some of the most common ones include:
Amplification
Cochlear Implants
Communication Options
Educational Placements
Your
Rights as a Parent
If you are to become an effective advocate for your child,
you must first know your rights, and the rights of your
child.
IDEA
- In June 1997, President Bill Clinton signed The Individuals
with Disabilities Act (IDEA) PL 105-917 - Part C. This
law guarantees all children with disabilities access to
a free and appropriate public education. To learn more
about the IDEA click within
our site or here:
http://nncf.unl.edu/ifspweb
IEP
- An Individual Education Plan (IEP) is basically an outline
of the goals and objectives developed by the IEP team
for your child. This team is made up of teachers, professionals
who will be working with your child, and you, the parent.
An IEP addresses how goals and objectives will be reached,
and should include ways to measure your child's progress.
To learn more about the IEP, click here:
http://www.wrightslaw.com/advoc/articles/iep_guidance.html
http://www.asec.net/tses/iepifsp.htm
http://www.the-callahans.com/susete/iep.htm
·IFSP
- The Individual Family Service Plan (IFSP) is similar
to the IEP, however it is used with children from birth
to age three. The IFSP differs from the IEP in that it
is family-centered, and includes goals not only for the
child, but for the family as well. It is designed to help
families and professionals work together to meet the developmental
needs of the child and provide support to the family.
To learn more about the IFSP, click here:
http://nncf.unl.edu/ifspweb/benefits.html
http://www.ericec.org/digests/e605.html
One
Step at a Time
We
have all experienced making a decision for our child that
we thought was the right one at the time but later discovered
that it might not have been the best choice after all. Unfortunately,
that is a part of life for all of us. None of us is going
to make the right decision every time. Fortunately, most
decisions are not a matter of life or death, and we have
the opportunity to re-evaluate the situation and look at
other options.
While
the thought of having to make so many decisions for your
child may be overwhelming, remember that most do not need
to be made immediately. You are not alone in having to make
these decisions. There is a wealth of information available
to you through professionals, other parents, individuals
who are Deaf or hard of hearing, books, and many good websites
on the Internet.
First
and foremost, don't forget that you need to give yourself
time be able to accept your child's hearing loss and adjust
to the changes that it might mean for your family. Once
you have begun to do this, you will be able to start to
educate yourself and move towards making the decisions that
need to be made.
As you
learn more you will have the information and confidence
needed to make tough decisions. This is a learning process,
and it is important to be flexible and open to the advice
and expertise of others. One parent said it very well when
they said, "The key to making good decisions for your
child is to get all of the information you can from reliable
sources. Make the decision based on the best information
you can get at the time, and don't look back." If you
remember this, you can't go wrong.
 
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