How
do we Decide?
Where Do I Start?
Making decisions for our children is difficult enough when
they do not have a hearing loss. When a disability is thrown
into the mix, making decisions becomes much more complicated.
At the
time of diagnosis, most parents know little about hearing
loss and the implications for their child. In fact, most
of us are acutely aware of how little information we have
to base our decisions upon. Sorting out what decisions need
to be made immediately and which ones can wait is often
difficult. Parents are put in the position of having to
rely on others, primarily professionals, to help them make
these decisions.
While
professionals are most often knowledgeable and helpful,
parents can benefit greatly from practical information from
other parents. It is important for parents to know what
their rights are, and to be presented with all of the options
available before making a decision.
Parents
also need to understand the importance of being flexible
and realize that no decision is set in stone. Just as all
children are different, no one mode of communication or
educational placement is right for every child. Understanding
this helps parents realize that changes may need to be made
along the way, and that although they will not always know
for certain that they have made the right decision at the
time, there are other options that can be explored if need
be.
Before
we even have time to adjust to the idea that our child has
a hearing loss, we find that there are many decisions to
be made. We are often asked to make important decisions
while still feeling very overwhelmed, and often have no
idea what might be best for our child. It is important to
remember that we make decisions based on the information
we have at the time, and that most decisions do not need
to be made immediately.
~"For
us it helped to ask whether or not a particular decision
had to be made immediately, and if so, why. More often
than not, when we explained that we were unsure of what
to do and that we felt like we needed a little more time
to decide, professionals would tell us that it was not
harmful to wait until we were sure. Knowing that we were
having a hard time making a decision often prompted them
to help us find more information or other individuals
to talk to about our concerns."
~"When
you feel overwhelmed with decisions, try to get all the
information you can from as many sources as you can. Trust
your ability to decide based on that information. Have
faith in your knowledge of your child. Indecision is so
much more difficult than deciding on something and moving
in a positive direction."
~"When
my son was identified as being profoundly deaf he was
11-months-old. I needed time to absorb this new thing
that I was facing and gather information. I read a lot.
I cried a lot. I talked to my Parent/Infant Specialist
a lot. I tip-toed into decision making. I started learning
sign language when my son was just over a year old. I
remember telling my boss that I wish I had known Peter
was deaf at an earlier age. She asked me why. 'So I could
have started learning sign language earlier
umm
well,
I don't know
It's just that I feel like a terrible
mother because I didn't know something about my child!'
But, during those 'wasted' eleven months, I was learning
to be a mom, exploring the world through his eyes, meeting
his every need. I had no experience with deafness, but
I had eleven whole months of being a mom. I knew my child's
every gurgle, every giggle. I knew I was Peter's mom."
~"Don't
make any decision if you are being pressured by someone
else to do so."
~"We
are so much more fortunate now than parents as recently
as 20 years ago in the fact that there are so many more
resources available to us. However, throwing all those
resources into the mix can make it even more confusing.
Don't listen to just one person. To make really good decisions
you must know all the options. Reading about these options
and doing research is a fantastic way to start. More importantly,
seek out other parents who have gone through the same
thing. It may also help to talk to various deaf and hard
of hearing adults and get feedback on the choices their
parents made for them."
~"Take
time to grieve and really come to terms with your child's
hearing loss, and don't make decisions based on emotions.
Listen to the advice of various people with different
views
your doctors, specialists, therapists, teachers,
educators, other parents. Read, get onto the Internet
and do some of your own investigating. Educate yourself
and get a good understanding of the options that are available
for your child. Put it all together and think about it
rationally so that you can make the best decision for
your child based on what you think and feel, and from
the information you have gathered and filtered through."
~"Ask
a lot of questions. Ask specifically what decisions have
to be made right now, and which ones can wait for awhile.
Most of the time professionals are willing to wait if
you are not completely comfortable with making a decision
too quickly. There are very few decisions that need to
be made immediately, and if you are being pressured by
a professional, that might be an indication that you need
to seek out others for advice. A good professional will
understand that parents need time to adjust to the idea
that their child has a hearing loss, and are willing to
give you more time and information if needed."

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