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Coping
with the Diagnosis: Parent Views
Where
to Find the Information You Need
There
are many ways to find information that will educate you
about your child's hearing loss, as well as how to cope
with that loss.
Information on Understanding Your
Child's Hearing Loss
The following links will help you locate information about
your child's hearing loss and many of the terms associated
with it.
Link to All
About Hearing Loss
American Society for Deaf Children Fact Sheets
http://www.boystownhospital.org/Hearing/info/index.asp
http://www.nichcy.org
(click on "Publications")
http://www.handsandvoices.org
(Click on "Articles Index" at bottom of page)
 Information on Finding Support from
Other Parents:
We often feel very alone. Most of us do not know anyone
else who has a child with a hearing loss, and we feel the
need to communicate with others in the same situation. Being
able to connect with other parents who share this experience
can be invaluable. There are local, statewide, and national
parent organizations that parents can tie into. Unfortunately,
they are not available in every city and state, but because
of internet access, parents all over the United States and
the world are able to connect, as well as offer support.
The following sites are just a sampling of the many sites
available:
http://www.deafchildren.org
http://listen-up.org
http://www.saywhatclub.com
http://www.shhh.org
http://www.parenttoparent.org
http://www.nichcy.org
Information On Deaf Culture and
Community
Soon after being told that our child is deaf, many of us
are told that there is something called "Deaf Culture,"
or "Deaf Community." The idea of our child becoming
part of a culture or community that is foreign to us is
frightening. Understanding what is meant by these terms
can be very helpful. We discover that there is a rich culture
that our child may someday choose to be a part of. It is
nothing to be feared.
Deaf and hard of hearing adults can
be a wonderful source of information and education, as well
as provide support in raising our children. Most are willing
to share their knowledge and personal experiences with us,
and welcome questions from parents who are striving to make
the best decisions possible for their children. Below you
will find links to web sites that will connect you to these
individuals.
http://www.nidcd.nih.gov
http://www.gallaudet.edu
http://www.nad.org
http://www.aslinfo.com
http://www.deaflibrary.org
http://www.deaflife.com
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