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Getting
Started with Early Intervention
Words
and Terms
download the pdf
You
will meet many specialists as you explore the needs of your
and your baby. They will sometimes sound as though they
speak a completely different language, especially to each
other. As parents you should feel free to ask for an explanation
of anything you don't understand. However, to give you a
head start, here are some of the terms frequently used by
professionals:
ADA (Americans with Disabilities Act)
(top)
This law was written mostly for public places and work environments,
but it applies to children as well. Education cannot be
denied to your baby because of a disability. As your baby
becomes older, telephone relays, closed captioning, visual
fire alarms and other adaptations need to be in the public
places, such as schools, where deaf children go.
IDEA (Individuals with Disabilities
Education Act) (top)
This is a law requiring that children with sensory impairments,
such as hearing loss, receive special education services
from the time that they are identified, no matter how young
they may be. IDEA spells out the requirements of special
education services from school districts, including a book
that includes all of your rights as parents.
IFSP (Individual Family Service
Plan) (top)
In states providing public school services for babies 0
to three years old, the law requires that every family with
a baby who is deaf or hard of hearing receive a plan including
goals determined by the parents and other team members.
These plans are updated every 6 months.
MDT (Multidisciplinary Team)
(top)
One person, especially one professional, is not allowed
to decide what is right for your baby. Professionals have
good information and advice to offer, but a team of adults
is more likely to make good decisions than a single person.
You are an important member of the team; you can, and should,
speak up for your baby. Generally, members of MDT's agree
on the importance of your baby's needs, and a strong team
can be a wonderful support for parents.
Audiogram
(top)
An audiogram is a chart that tells you the results of a
hearing test given in a soundproof booth by an audiologist.
It marks the loudness level at which your baby becomes aware
of pure tones or "beeps" at various pitches. As
soon as possible, audiologists test each of your baby's
ears separately. Although an audiogram does not tell you
everything about how your baby uses sound, it does give
the audiologist very important information about fitting
the right hearing aids.
Hearing Aid
(top)
A hearing aid makes sounds louder. It does not correct hearing
in the same way that glasses often correct sight. Different
children need different kinds of hearing aids, and get different
amounts of benefit from them. For hard of hearing children,
and deaf children who have "usable residual hearing",
a hearing aid is a most important piece of equipment.
Usable Residual Hearing
(top)
Very few people are completely deaf. Your audiologist can
explain to you the ways that your baby can use
hearing aids to listen to people speaking and sound in the
environment. Not all babies can use hearing alone to learn
speech and language, but for them there are ways to combine hearing
with other types of communication to help your baby take
part in the family and the community.
Cochlear Implant
(top)
Cochlear implants are another kind of listening aid. They
require surgery and are expensive, although many insurance
companies now cover at least part of the cost. They work
differently that hearing aids and not everyone can benefit
from an implant. The results from using cochlear implants
are encouraging, however, for many individuals with specific
kinds of hearing loss. Before you consider getting a cochlear
implant for your baby, you should probably do research,
go through an evaluation, and talk with an implant team.
You can find much more information at the Cochlear Implant
page of this website. For more information about audiograms,
hearing aids, cochlear implants and audiology, see the About
Hearing Loss section of this web site.
Communication Modality:
(top)
Because every baby and every family is different, the decision
about which way to communicate (modality) must be made carefully,
based on your baby and family's needs. Sometimes a combination
of ways to communicate is the best decision. Any decision
will require commitment from you and from the professionals
on your baby's team. The modalities most often used in the
United States include:
Auditory-Verbal (A-V), or
the use of only hearing in developing speech and language.
If your baby has enough residual hearing, or can use residual
hearing well, then early use of auditory/verbal methods
can be helpful. Audiograms do not always predict which
children will be able to learn enough language through
auditory/verbal methods alone.
Oral/Aural communication,
or the use of hearing and speechreading. If your baby
has enough usable residual hearing to learn language from
listening, then this modality is a good choice. However,
your baby will still need good hearing aids, a quiet environment,
language stimulation, and help from you and your infant/family
specialist in order to develop speech and language.
Cued Speech, or the use of
hand shapes and speechreading to support your baby's listening.
Many sounds look alike on the face and children with limited
hearing can become confused. Cued speech is a way of showing
English clearly.
Manually Coded English (MCE),
or a way of expressing the English language on the hands.
For children with profound hearing loss, MCE can be a
good tool for learning English grammar and beginning to
read. For long and complicated ideas, MCE is not always
the best way to communicate visually; however, many hearing,
English speaking parents use MCE with their babies.
American Sign Language, (ASL) or
the language of the Deaf Community in the United States.
Any idea that can be expressed in English can be completely
expressed visually in ASL, so many parents try to give
their children the chance to meet people who are fluent
in ASL. That way, even very young babies have access to
adults and children communicating with each other. However,
ASL is hard for hearing parents to learn quickly.
Aural Habilitation
(top)
Aural habilitation is how you and your infant/family specialist
help your baby compensate for hearing loss. Teachers of
the deaf and hard of hearing, speech language clinicians,
audiologists and parents all learn how to help babies listen.
Habilitation includes the right hearing aids or cochlear implant, set appropriately for your
baby, with new batteries and working parts. Someone must
be responsible for checking the hearing devices every day.
It also includes teaching your baby to attend to sounds
that we would think are very soft, so someone must be aware
of limiting extra noise in the environment and calling the baby's attention
to all of the important sounds. Everyone in the family can
make speech and sound interesting by staying close to the
baby while talking, using funny noise maker toys, and pointing
out the sound made by flushing the toilet, the telephone,
the doorbell, the vacuum cleaner, and the finished microwave.
Infant/family specialists can give you ideas about other
early aural habilitation strategies. When your baby begins school,
teachers and clinicians will continue to provide listening
learning opportunities and practice.
Least Restrictive Environment (LRE)
(top)
IDEA calls for each child to receive services in the least
restrictive environment. For children who can hear, even
if they have other challenges, this means a supportive program
with children who go to public schools, who can provide
good language and behavior models. This is called inclusion.
Many deaf, or hard of hearing children do very well in inclusive settings. Others have difficulty
communicating with other children in a public school program.
They can become isolated, lose a chance to communicate with
their peers and learn social skills, and miss much of what
goes on in the classroom. For many reasons, including the
fact that many educational interpreters are not certified,
even a deaf child with an interpreter can be frustrated
in the classroom. The
parent intervention services for you and your baby can help
you make educational decisions in the future about what
is really the least restrictive school environment for your child.
Ongoing Assessment
(top)
An ongoing assessment of your baby's development is required
by IDEA. Especially at the beginning of your parent intervention,
when you are finding out about how your baby hears and learns,
you and your infant/family specialist need to keep a close
watch on how your baby changes. Later, formal assessment,
or testing, may happen every year, or even every three years.
Now and later, however, someone needs to continually look
at you child's progress, in order to support you in making appropriate decisions.
Self Contained Programs
(top)
Both public schools and state residential or day schools
provide programs where deaf children learn with other deaf
children, or where they mix with hearing children part of
the time, but interact with Deaf adults and peers every
day. These programs sometimes provide the LRE, because children
can have full access to language, school curriculum and
social interaction. Sometimes a child may not be adequately
challenged by the curriculum of a self contained program,
and it may not be the LRE for learning. Again, with ongoing
assessment, you as parents, with your educators, can make
decisions for a specific child, not just once, but over
and over as your baby grows into childhood and enters the
school years.
For more information about aural habilitation,
least restrictive environment, ongoing assessment and self
contained programs, see the section called Getting Ready
for School on this web page.

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